About

I am a youngish mom of a 3 1/2 5 year old boy and an 7 8 1/2 year old girl and I was diagnosed with inflammatory breast cancer in May 2009. This is a relatively rare and aggressive form and had already spread to my liver, right lung, and bone (5 spots) when we found it. That is the nature of this type though. It doesn’t show up until it has been around awhile.

I have two beautiful children. My daughter was 6 and he was 3 when I was diagnosed. She is understanding more now and my son is just starting to really get it. They are the reason I fight as hard as I do and they are the most heartbreaking part of all of this. They ask questions and we are as age appropriate as possible – we don’t lie to them and we don’t hide the situation from them. Sometimes I wonder if this is the best way but I don’t see how else to do it.

The statistics on this variety stink, BUT the only statistic I am concerned about is mine because I have a son and a daughter to raise and grandchildren to meet. So far I have had chemo and things are responding, my lung is now clear and everything else has shrunk. I’ve had my ovaries out, a double mastectomy (with reconstruction) and am back on chemo as of February 2010 because the stuff in my liver wasn’t cooperating. As of September 2010 I am still on chemo and it is working. As of February 2011 I am on a chemo break and will have scans in March – if it remains stable or shrinks – I stay on the break. If it grows we try something else.

CT scans in March 2011 showed things basically stable in my liver, lung and bone. I celebrated for about a week and then my eyes started acting weird. According to an MRI it is in my brain as of March 22, 2011. Started whole brain radiation because of the diffuse nature. This is going to be hiccup.

As you read you will notice that I almost always misspell cansur, that is intentional, it makes me feel better to misspell it. If it is spelled correctly then it is usually a quote, the name of something or for emphasis.